The invisible brain disorder leaving thousands without answers

A rare but increasingly recognised brain condition is affecting thousands worldwide, yet many still struggle to find answers. Functional neurological disorder (FND) is one of the most common diagnoses in neurology, yet it remains poorly understood and under-researched. For Kim Lameront, the journey to diagnosis began after a complication during brain surgery left her with life-altering symptoms—and few clear explanations.

FND is a complex condition where the brain functions normally but fails to send or receive signals correctly. Unlike many neurological disorders, it does not appear on standard scans, making diagnosis difficult. Studies suggest it affects 4 to 12 people per 100,000 annually, with higher rates in countries like the US, UK, and Northern Europe due to better diagnostic tools rather than higher actual cases.

Women are two to three times more likely to develop FND than men. Historically, the disorder was often dismissed, leaving patients without proper care. Lameront experienced this firsthand: months after her diagnosis, she felt abandoned, with little guidance on managing her symptoms. In response, she founded **Healing Horizons**, an organisation offering resources and support to others with FND. Recent research also highlights a broader trend—women face a higher risk of brain diseases, including dementia and Alzheimer's. Dr. Allison Sekuler, Chief Scientist at Baycrest, notes that while 45% of dementia risk factors can be modified through lifestyle, women often have less control over certain risks, such as depression. Both FND and Alzheimer's can benefit from healthier habits, but awareness remains low. Dr. Sekuler urges anyone experiencing unusual neurological symptoms to seek help early. Without visible markers on scans, FND often goes unrecognised, delaying treatment and support.

Lameront's organisation now provides a lifeline for those navigating FND, filling gaps left by limited medical research. Meanwhile, experts stress the need for better awareness of brain health risks, particularly for women. With more studies and support, conditions like FND may one day receive the attention—and solutions—they require.